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Brain Tumor Quality of Life Research Summit
Outcomes
The Tug McGraw Foundation took a significant step in advancing discussion about the importance of brain tumor quality of life research.
- 28 multi-disciplinary cancer researchers, clinicians and advocates participated in the day and half session
- Solution-focused discussion to
- identified barriers to producing good quality of life research
- developed and prioritized strategies for overcoming those barriers
- Dr. Anna Barker, Deputy Director, NCI, presented on how NCI is Shaping Quality of Life for Brain Tumor Patients Through Science and Technology
- The "clarity and content of the agenda was excellent" according to participants
- Recognition from all involved that TMF has the presence to influence thinking and achieve tangible, relevant outcomes
This meeting supported in part by MGI Pharma, a wholly-owned subsidiary of Eisai Corporation of North America
Next Steps
Participants agreed on four key areas that must be addressed in order to improve quality of research and funding:
- Define quality of life
- Bridge lack of clinical and practitioner buy-in
- Increase QOL funding
- Overcome the disconnect between clinicians and researchers
TMF looks forward to taking a leadership role in supporting and implementing next steps and strategies to further the discussion to support improved quality of life for patients with brain tumors.
Thank you to the Philadelphia Phillies for sharing Citizens Bank Ballpark with TMF.
According to participants, "The ballpark rocked!" |
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"This was the meeting that had to happen,"
Brian Patrick O’Neill,
Mayo Clinic
"... You and your team managed to pull together an incredibly diverse group of people who - in the end - really seemed to coalesce around some very important issues ... If you had told me on the bus Monday night that such a consensus would be reached by noon on Tuesday, I would have laughed..."
Cynthia Gilman,
Henry M. Jackson Foundation for the Advancement of Military Medicine
"It was truly a great experience, and I am honored to serve in whatever capacity you like."
Christina A. Meyers,
Ph.D., ABPP, MD Anderson Cancer Center |
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